Welcome to the birth defect section of the Babblefish special needs area. We have put this section together to help folks that have a birth defect or a loved one that has a birth defect. . We hope to add sites and links to help you find help and support.

Birth Defects

National Birth Defects Prevention Network – information about the organization, news, publications and upcoming meetings. Links to state monitoring programs, national as well as international.

Birth Defect Research for Children – provides parents and expectant parents free fact sheets about the most common categories of birth defects. They also offer a parent networking service that will connect you with other families who have children with the same birth defects.

National Center on Birth Defects and Developmental Disabilities -There work includes identifying the causes of birth defects, birth defects research, developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.

Fragile X Research Foundation – Learn more about Fragile X syndrome and the Fragile X Research Foundation which supports research to find a treatment and a cure for Fragile X.

March of Dimes Birth Defects Foundation -improve the health of babies by preventing birth defects, premature birth, and infant mortality. We carry out this mission through research, community services, education and advocacy to save babies’ lives.

The Geneva Foundation for Medical Education and Research - (GFMER) is a non-profit organization established in 2002. It is supported by the Department of Health of the Canton of Geneva, the Faculty of Medicine, Geneva University, and the Geneva Medical Association, and works in close collaboration with the World Health Organization (WHO). GFMER is a WHO Collaborating Centre in Education and Research in Human Reproduction. It has a large searchable data base with many facts.

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MedlinePlus – will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

International Clearinghouse for Birth Defects Surveillance and Research web guide – on congenital malformations to provide essential information on the most common congenital anomalies, to represent a valid working tool for the clinicians and to be an important source of information for lay people (affected individuals, their families and the community) that want or “have to” deepen their knowledge on this matter

International Clearinghouse for Birth Defects Surveillance and Research birth defect definitions - concise list of birth defects and their definitions.


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